The moment she feels sleepy, “nigh nigh” is announced. She will immediately sit on my husband’s lap to be carried upstairs. We cannot hesitate. Some nights are perfect- she brushes her teeth, uses the potty, and then jumps into bed without incident. Other nights….any little thing can trigger a meltdown.
Once Teghan is upset the meltdown is instantly in full force. There is no warning or lead up time in which we can apply a strategy. And once the screaming has begun all communication efforts will fail. We have figured out some of the triggers, but many are still a mystery. Here are the reasons we know so far in the order they usually occur: Continue reading
This journey with autism has been a real roller coaster ride. Sometimes the ride is fun, and other times I get terrified that the ride won’t stop. It won’t you know, but it does keep changing so you never really know if it’s going to get better on the next turn. Hope keeps you sane when you don’t know what else to do.
Like everything, there are good days and bad days. For instance, I wonder what the neighbors think was going on in our house last night. It was one of those nights when Teghan just wouldn’t go to bed. She wanted to go to bed. She wanted to be in her room, at least. But what she does is run frantically back and forth- screaming, giggling, kicking the door, pounding on the windows, and knocking all of her furniture over. She seems so happy to do this.
The hardest part of this for us is that communication has no effect. I mean, if we tell her to get in bed she will, but she will be cracking up laughing the whole time. She will get up within seconds, and she is like a train that can’t be stopped. The hysterical laughing and screaming are what send us over the edge. And the helplessness. Continue reading